baby
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First-ever therapy for rare genetic disease in babies to save lives on the NHS

Babies and toddlers with a rare and fatal genetic condition can now receive a life-saving treatment on the NHS for the first time.   Sebelipase alfa (Kanuma®), an enzyme replacement therapy, will become the first treatment available on the NHS for Wolman disease, a condition which presents in babies and children under two years old….

child mental health
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One in five children and young people had a probable mental disorder in 2023

One in five children and young people in England aged eight to 25 had a probable mental disorder in 2023, a new survey shows   The Mental Health of Children and Young People in England 2023 report, published today by NHS England, found that 20.3% of eight to 16-year-olds had a probable mental disorderin 2023….

female nurse with mask putting gloves
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One-year waits reduce for patients as record demand for NHS emergency care continues

NHS staff are managing record demand across emergency care ahead of winter, with new data showing Type 1 A&Es and ambulance services experienced their busiest month this year in October.   New data published today shows more than 2.2 million people attended A&Es last month (2,219,618), making it the busiest October on record, and the…

coronavirus
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Public asked to shape future use of health data by the NHS

Members of the public will be asked to help shape how the NHS uses their health data to improve patient care, as part a series of major events next year.   The events, starting in the new year and continuing until March 2025, will gather public views on digital and data transformation in the NHS….

nurse 100
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New CQC Guidance: The CQC digital record system guidance prioritises availability, security, and governance while adopting a person-centred approach.

The Care Quality Commission (CQC) has issued guidelines on best practices for digital record systems. The focus is on the importance of “good quality records” in delivering safe, effective, compassionate, and high-quality care. The CQC shares four principles for providers to follow in order to maintain person-centred systems with an emphasis on availability, security, and…