First-ever therapy for rare genetic disease in babies to save lives on the NHS
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First-ever therapy for rare genetic disease in babies to save lives on the NHS

Babies and toddlers with a rare and fatal genetic condition can now receive a life-saving treatment on the NHS for the first time.   Sebelipase alfa (Kanuma®), an enzyme replacement therapy, will become the first treatment available on the NHS for Wolman disease, a condition which presents in babies and children under two years old….

One in five children and young people had a probable mental disorder in 2023
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One in five children and young people had a probable mental disorder in 2023

One in five children and young people in England aged eight to 25 had a probable mental disorder in 2023, a new survey shows   The Mental Health of Children and Young People in England 2023 report, published today by NHS England, found that 20.3% of eight to 16-year-olds had a probable mental disorderin 2023….

Expanded NHS support available for patients in GP practices across the country
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Expanded NHS support available for patients in GP practices across the country

The support on offer for patients at their GP practice is expanding, thanks to thousands more healthcare staff working in local communities and the new GP access recovery plan. More than 31,000 additional staff have been recruited into healthcare roles at general practices across the country since 2019 – meaning an expanded team of health…

Public asked to shape future use of health data by the NHS
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Public asked to shape future use of health data by the NHS

Members of the public will be asked to help shape how the NHS uses their health data to improve patient care, as part a series of major events next year.   The events, starting in the new year and continuing until March 2025, will gather public views on digital and data transformation in the NHS….

New CQC Guidance: The CQC digital record system guidance prioritises availability, security, and governance while adopting a person-centred approach.
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New CQC Guidance: The CQC digital record system guidance prioritises availability, security, and governance while adopting a person-centred approach.

The Care Quality Commission (CQC) has issued guidelines on best practices for digital record systems. The focus is on the importance of “good quality records” in delivering safe, effective, compassionate, and high-quality care. The CQC shares four principles for providers to follow in order to maintain person-centred systems with an emphasis on availability, security, and…