First-ever therapy for rare genetic disease in babies to save lives on the NHS
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First-ever therapy for rare genetic disease in babies to save lives on the NHS

Babies and toddlers with a rare and fatal genetic condition can now receive a life-saving treatment on the NHS for the first time.   Sebelipase alfa (Kanuma®), an enzyme replacement therapy, will become the first treatment available on the NHS for Wolman disease, a condition which presents in babies and children under two years old….

One-year waits reduce for patients as record demand for NHS emergency care continues
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One-year waits reduce for patients as record demand for NHS emergency care continues

NHS staff are managing record demand across emergency care ahead of winter, with new data showing Type 1 A&Es and ambulance services experienced their busiest month this year in October.   New data published today shows more than 2.2 million people attended A&Es last month (2,219,618), making it the busiest October on record, and the…

Public asked to shape future use of health data by the NHS
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Public asked to shape future use of health data by the NHS

Members of the public will be asked to help shape how the NHS uses their health data to improve patient care, as part a series of major events next year.   The events, starting in the new year and continuing until March 2025, will gather public views on digital and data transformation in the NHS….

New CQC Guidance: The CQC digital record system guidance prioritises availability, security, and governance while adopting a person-centred approach.
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New CQC Guidance: The CQC digital record system guidance prioritises availability, security, and governance while adopting a person-centred approach.

The Care Quality Commission (CQC) has issued guidelines on best practices for digital record systems. The focus is on the importance of “good quality records” in delivering safe, effective, compassionate, and high-quality care. The CQC shares four principles for providers to follow in order to maintain person-centred systems with an emphasis on availability, security, and…

Awards recognising remarkable NHS workers open for nominations
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Awards recognising remarkable NHS workers open for nominations

The NHS has today (6 March) launched the NHS Parliamentary Awards 2023, which recognise staff who have gone above and beyond the call of duty.     The awards were created to celebrate NHS staff, carers and volunteers – their hard work, innovative ideas and unwavering efforts to put patients first – and this year they…